Assessing the value of patient data: A qualitative exploration of hospital/industry data partnerships
Saturday, September 21, 2024
11:30 AM – 12:30 PM CT
Location: Midway 7-8 (First Floor)
Abstract: As the value of the AI healthcare market increases exponentially, the commercial industry is increasingly turning to hospitals to provide the clinical data necessary to support development of these tools. Unlike commercial health applications, where consumers generally “opt-in” by choosing to purchase or share health data, hospital patients cannot “opt-out” of sharing health information with their clinicians as part of clinical care. As a result, hospitals are a rich source of healthcare data, and are being “inundated with requests” from the commercial industry to share. However, there is little known about the kinds or scope of incentives that hospitals are receiving in exchange for access to their clinical data. In this qualitative project involving interviews with academic medical center stakeholders in charge of patient data sharing (n=35) we examined their industry relationships (if any) including type of industry partners (e.g., biotechnology, pharmaceutical, analysis platform) and any incentives or remuneration received in exchange for patient data. We found that remuneration can include licensing agreements for industry-derived machine-learning models, discounted clinical data analyses, EMR ‘awards’ and invoice credits, or access to the data necessary for high-impact research. Almost no interviewees were able to describe how value was shared with the patient population, beyond anticipated research advances. This talk will explore this previously unknown area of hospital compensation for patient data sharing and assess ethical tensions at play from an institutional perspective.
Learning Objectives:
After participating in this conference, attendees should be able to:
Understand how the AI healthcare market is creating demand for hospital's healthcare data.
Understand the incentives offered to hospitasls by indsutry found in this qualiataive study of academic medical centers.
Examine the ethical tensions created by compensation to hospitals by industry for sharing patient data.
J. Denard Thomas – University of Michigan; Kerry Ryan – University of Michigan; Jodyn Platt – University of Michigan; Melissa Creary – University of Michigan; Alexandra Vinson – University of Michigan; Camille Giacobone – University of Michigan; Skyler Pearse – University of Michigan; Kayte Spector-Bagdady – University of Michigan
